World Federation of Hemophilia

World Federation of Hemophilia
Founded1963; 61 years ago (1963)
FounderFrank Schnabel
Location
Area served
Worldwide
MethodTherapy, Aid, and Education
Members
147 National Member Organizations[2]
Key people
President Cesar Garrido [3]
Websitewfh.org

The World Federation of Hemophilia (WFH) is an international non-profit organization dedicated to improving the lives of people with hemophilia (also spelled haemophilia) and other genetic bleeding disorders. It educates people with bleeding disorders and lobbies for improved medical treatment.[4][5] 75% of people in the world with bleeding disorders do not know it and do not receive care.[6][7]

The WFH was established by Frank Schnabel in 1963 and has its headquarters in Montreal, Canada.[1][8] It has member organizations in 147 countries and official recognition from the World Health Organization.[2] The current President is Cesar Garrido.[9][10]

World Hemophilia Day

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World Hemophilia Day is held annually on April 17 by the WFH.[11] It is an awareness day for hemophilia and other bleeding disorders,[12] which also serves to raise funds and attract volunteers for the WFH.[13] It was started in 1989; April 17 was chosen in honor of Frank Schnabel's birthday.[14][15]

Themes by year

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  • 2023: "Access for All: Prevention of bleeds as the global standard of care"[16]
  • 2022: "Access for All: Partnership. Policy. Progress. Engaging your government, integrating inherited bleeding disorders into national policy"[17]
  • 2021: "Adapting to Change, Sustaining care in a new world"[18]
  • 2020: "Get+Involved"[19]
  • 2018: "Sharing Knowledge Makes Us Stronger"[20]
  • 2017: "Hear their voices"[21]
  • 2016: "Treatment for All, The Vision of All"[22]
  • 2010: "The Many Faces of Bleeding Disorders – United to Achieve Treatment for All"[23]
  • 2009: "Together, We Care"[24]
  • 2008: "Count Me In"[25]
  • 2007: "Improve Your Life!"[26]

References

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  1. ^ a b O'Mahony, B. (October 2004). "WFH: back to the future". Haemophilia. 10 (s4): 1–8. doi:10.1111/j.1365-2516.2004.00981.x. ISSN 1351-8216. PMID 15479364. S2CID 25043790. World Federation of Hemophilia, Montreal, Quebec, Canada...the WFH headquarters at the address above.
  2. ^ a b Pierce, Glenn F.; Adediran, Megan; Diop, Saliou; Dunn, Amy L.; Ekiaby, Magdy El; Kaczmarek, Radoslaw; Konkle, Barbara A.; Pipe, Steven W.; Skinner, Mark W.; Valentino, Leonard A.; Robinson, Fiona; Ampartzidis, Georgios; Martin, Jayson; Haffar, Assad (2022-09-01). "Achieving access to haemophilia care in low-income and lower-middle-income countries: expanded Humanitarian Aid Program of the World Federation of Hemophilia after 5 years". The Lancet Haematology. 9 (9): e689–e697. doi:10.1016/S2352-3026(22)00209-5. ISSN 2352-3026. PMID 36055333. S2CID 251960105. The World Federation of Hemophilia (WFH) was created in 1963, and, nowadays, it includes national member organisations from 147 countries.
  3. ^ "Governance - World Federation of Hemophilia". Retrieved 2021-05-27.
  4. ^ "Vision and Mission - World Federation of Hemophilia". www.wfh.org. Retrieved 2020-04-16.
  5. ^ Raabe, Michelle (2008). Hemophilia. Infobase Publishing. p. 123. ISBN 978-0-7910-9648-2. The WFH is an international, not-for profit organization that works to improve standards of treatment, promote advocacy, provide education, and advance medical research concerning hemophilia.
  6. ^ Venkataraman, Lakshmi (16 April 2019). "World Hemophilia Day - Reaching Out". Medindia. Retrieved 2023-04-18. World Hemophilia Day 2019 aims to reach out as far and wide as possible to ensure proper diagnosis and treatment to nearly 75 percent of patients who still remain undiagnosed or don't have access to treatment.
  7. ^ "Fast Facts". National Hemophilia Foundation. 2014-03-04. Retrieved 2020-04-16.
  8. ^ James, Andra H. (7 May 2008). 100 Questions and Answers about Von Willebrand Disease. Jones & Bartlett Learning. p. 117. ISBN 978-0-7637-5767-0. LCCN 2008011434. The World Federation of Hemophilia (WFH) was established in 1963 by Frank Schnabel, a Montreal businessman born with severe hemophilia A.
  9. ^ "History - World Federation of Hemophilia". www.wfh.org. Retrieved 2020-04-16.
  10. ^ "World Hemophilia Day 2023 - "Access for All: Prevention of bleeds as the global standard of care"". Yahoo Finance. 17 April 2023. Retrieved 18 April 2023. Cesar Garrido, WFH President.
  11. ^ "April 17 is World Hemophilia Day". The Canadian Nurse. 111 (3): 8. April 2015. ISSN 0008-4581.
  12. ^ Prep Experts, Edugorilla (15 September 2022). Current Affairs Banking Notes : A Complete Current Affairs Preparation Book for All Banking Related Exams (ebook). EduGorilla. World Hemophilia Day is aimed at raising awareness about haemophilia and other bleeding disorders.
  13. ^ "World Haemophilia Day 2023: Theme, History, Significance, Full Details". Business Standard. 17 April 2023. Retrieved 19 April 2023. The World Federation of Haemophilia (WHF) started the day observed on April 17th...to raise awareness and funds for those who cannot afford treatment for this disease.
  14. ^ "WHD 2020". www.worldhemophiliaday.org. Archived from the original on 2020-04-23. Retrieved 2020-04-16.
  15. ^ Testbook.com (May 2019). Current Affairs Capsule April 2019. Testbook.com. p. 7. April 17 is observed as the World Haemophilia Day every year...It was started in 1989 by the World Federation of Hemophilia (WFH) which chose to bring the community together on April 17 in honour of WHF founder Frank Schnabel's birthday.
  16. ^ "World Haemophilia Day 2023: Importance, theme, and all you need to know about the medical condition". India Today. 17 April 2023. Retrieved 2023-04-18. The theme of World Haemophilia Day 2023 is "Access for All: Prevention of Bleeds as the global standard of Care".
  17. ^ Learning, Power (2022-10-29). Current Affairs Manual 2022. Diamond Pocket Books Pvt Ltd. p. 51. ISBN 978-93-5684-123-9. 17th April 2022 - World Hemophilia Day - Theme: "Access for All: Partnership. Policy. Progress. Engaging your government, integrating inherited bleeding disorders into national policy".
  18. ^ "World Hemophilia Day 2021 - World Federation of Hemophilia". www.wfh.org. Retrieved 2021-05-27.
  19. ^ Hemophilia, World Federation of (17 April 2020). "World Hemophilia Day 2020" (Press Release). PR Newswire US. Retrieved 2023-04-19. The theme of World Hemophilia Day in 2020 is "Get+involved".
  20. ^ Dennis, Aaron (2018-04-17). "World Haemophilia Day 2018". The Haemophilia Society. Retrieved 2023-04-19. We are also promoting the World Haemophilia Day theme that sharing knowledge makes us stronger.
  21. ^ "Bioverativ Joins in Celebration of World Hemophilia Day". Business Wire (Press Release). 17 April 2017. Retrieved 19 April 2023.
  22. ^ "European Haemophilia Consortium (EHC)". Retrieved 2023-04-19. This year's EHC celebration was in line with the theme proposed by the World Federation of Hemophilia (WFH): 'Treatment for all, the vision of all.'
  23. ^ "World Hemophilia Day 2010". World Federation of Hemophilia. Archived from the original on 2010-04-04. Retrieved 2010-04-17.
  24. ^ "World Hemophilia Day 2009". World Federation of Hemophilia. Archived from the original on 2012-02-22. Retrieved 2010-04-17.
  25. ^ "World Hemophilia Day - 2008". Retrieved 2010-04-17.
  26. ^ "World Hemophilia Day". Archived from the original on 2011-03-24. Retrieved 2010-04-17.
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