World Lymphoma Awareness Day

World Lymphoma Awareness Day (WLAD) is held on September 15 every year and is a day dedicated to raising awareness of lymphoma, an increasingly common form of cancer. It is a global initiative hosted by the Lymphoma Coalition (LC), a non-profit network organisation of 83 lymphoma patient groups from 52 countries around the world. WLAD was initiated in 2004 to raise public awareness of both Hodgkin and non-Hodgkin lymphoma in terms of symptom recognition, early diagnosis and treatment.[1]

Lymphoma is increasing in incidence[2][3] and is a potentially life-threatening disease. One million people worldwide live with lymphoma[4] and nearly 1,000 people are diagnosed with the disease every day,[4] but there continues to be very little awareness of the signs and symptoms of lymphoma.[5]

2008 Global Patient Survey shows that:

  • When asked if they know their nodes, only half (49 percent) of people said they know what nodes do[6]
  • Although most respondents have heard of lymphoma, 52 percent of people know very little or nothing about it[6]
  • Two-thirds (67 percent) of respondents did not know lymphoma is a type of cancer and that it has one of the fastest growing incidence rates worldwide[6]
  • 90 percent of people do not think enough is being done to fund lymphoma research[6]

Increasing awareness of lymphoma will allow people around the world to better recognize its signs and symptoms, leading to earlier diagnosis and more timely treatment. Greater awareness will also empower patients and their families to demand specialist treatment and care from qualified lymphoma physicians as well as gain access to the most up-to-date information, support and treatment.

WLAD Campaigns

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Know Your Nodes

Know Your Nodes is a public awareness campaign created with the insight that people know little about their lymphatic systems and, in turn, lymphoma. An international survey conducted in 2006 by the Lymphoma Coalition revealed that nearly three-quarters (74 per cent) of people did not know lymphoma was a type of cancer and less than half (49 per cent) knew anything about lymphoma at all. With this knowledge in mind, the Know Your Nodes campaign was created to take people back to the basics and learn more about their lymph nodes, lymphatic systems and lymphoma in time for WLAD.[7]

Know Your Nodes engages people around the world in learning more about their lymph nodes, the lymphatic system, and the signs and symptoms of lymphoma. Lymphoma’s signs and symptoms can be similar to other, less serious illnesses, and increasing awareness of lymphoma will allow people around the world to better recognise its signs and symptoms, leading to earlier diagnosis and more timely treatment.

Beacons of Hope

The Beacons of Hope program was created in 2006 to celebrate inspiring people around the world that have been affected by lymphoma. Lymphoma Coalition members were asked to nominate individuals affected by lymphoma who acted as global Beacons of Hope ambassadors.[8][9][10][11][12] The ambassadors spread the word of hope across the world, bringing real life experience to WLAD.[13]

The Lymphoma Club

The Lymphoma Club was founded in 2010 to recognize those affected by all lymphomas (Hodgkin's and non-Hodgkin's lymphoma) and to help raise awareness for lymphoma.

History

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Since its launch in 2004, WLAD has made its mark internationally, from inspirational showcases of art in Argentina, to bike tours in France, and patient seminars in New Zealand. The global campaign continues to provide a platform for doctors, nurses, patient support groups, patients and their families to share vital knowledge about lymphoma, its signs and symptoms, and how it affects lives of thousands of people around the world.[14][15]

In 2007, Lymphoma Coalition launched the Know Your Nodes campaign internationally to help people learn more about lymph nodes, the lymphatic system and lymphoma.

About Lymphoma Coalition

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Lymphoma Coalition is a non-profit network organisation of lymphoma patient groups. Established in 2003, it is a global initiative dedicated to raising awareness of lymphoma, a common form of cancer, and promoting the well-being of people affected by lymphoma worldwide. Its mission is to:

  • Be the global source for lymphoma facts and statistics
  • Improve awareness and understanding of lymphomas
  • Build capacity for new and existing lymphoma groups.

Notes

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  1. ^ Λούβρου, Κωνσταντίνου (14 September 2018). "Τι είναι το λέμφωμα και ποια τα συμπτώματα;". Agrinio Press (in Greek). Greece. Retrieved 27 January 2019.
  2. ^ World Health Report 200, World Health Organization, www.who.int
  3. ^ Jones, Jacqui (15 September 2012). "World Lymphoma Awareness Day". Newcastle Herald. Newcastle, New South Wales, Australia. Retrieved 27 January 2019.
  4. ^ a b GLOBOCAN 2002: Descriptive Epidemiology Group of the International Agency for Research on Cancer (IARC)
  5. ^ Boshomane, Pearl (15 September 2011). "Today is World Lymphoma Awareness Day". Sunday Times. Johannesburg, South Africa. Retrieved 27 January 2019.
  6. ^ a b c d Lymphoma Coalition conducted an online international survey using surveymonkey.com from July 3, 2008 until July 25, 2008. A total of 744 people participated in the survey.
  7. ^ Knight, Anwar (6 September 2013). "It's Worth Noding…". CTV News. Toronto, Canada. Retrieved 27 January 2019.
  8. ^ "Barrister Denise is 'beacon of hope'". The Star. Sheffield, South Yorkshire, England. 6 October 2010. Retrieved 27 January 2019.
  9. ^ "National cancer charity honours Cardiff nurses for being 'Beacons of Hope'". Cardiff Times. Cardiff, Wales. 29 January 2018. Retrieved 27 January 2019.
  10. ^ Jordan, Barbara (21 November 2017). "Cancer ward staff hailed beacons of hope". Runcorn & Widnes World. Warrington, Cheshire, England. Retrieved 27 January 2019.
  11. ^ "National cancer charity honours RUH nurse for being a 'Beacon of Hope'". Bath Echo. Bath and North East Somerset, England. 21 November 2017. Retrieved 27 January 2019.
  12. ^ "Bridport woman "Beacon of Hope" for cancer patients". Wessex FM. Dorchester, Dorset, England. 5 December 2017. Retrieved 27 January 2019.
  13. ^ "'Beacons of hope' projected onto South Bank landmark". LondonSE1 Community Website. London, England. 14 September 2005. Retrieved 27 January 2019.
  14. ^ "Pasaulinė limfomos žinomumo diena - ir Lietuvoje". Vakary ekspresas (in Lithuanian). Klaipėda, Lithuania. 14 September 2009. Retrieved 27 January 2019.
  15. ^ Al-Ani, Manal (13 September 2017). "World Lymphoma Awareness Day". SBS Radio Arabic24. Australia. Retrieved 27 January 2019.
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